What Is Cystic Fibrosis?

So.. what is CF? I hear you ask

Cystic Fibrosis (CF) is a genetic disease you get when your Mum and Dad have a CF gene and then they have you (yeah.. awkward bit :L) and you have both of their CF genes.
It effects different people in different ways.
It can effect your chest, being more prone to catching infections
It can also effect your digestive system as we are missing an enzyme that absorbs fat, so it's difficult to put on weight.. yay you probably all think, but you don't know how much I long I wish to be chubby... really.
& Yeah we can east as much rubbish as we want!

But it's not all fun and games (well it never is really) we have to have IV (intravenous antibiotics) that go into your veins and give direct access to your body and fights disease better!

Many people with CF have a port, I don't but am getting one on the 21st November. I'm a little nervous, who wouldn't be? 

What is Cystic Fibrosis? - From the Cystic Fibrosis Trust http://www.cftrust.org.uk/aboutcf/whatiscf/
  • Cystic Fibrosis (CF) is one of the UK's most common life-threatening inherited diseases.
  • It is caused by a faulty gene that controls the movement of salt and water in and out of the cells within the body.
  • Cystic Fibrosis affects the internal organs, especially the lungs and digestive system, by clogging them with thick sticky mucus. This makes it hard to breathe and digest food.
  • Over 9,000 people in the UK have Cystic Fibrosis.
  • If two carriers have a child, the baby has a 1 in 4 chance of having Cystic Fibrosis.
  • Over two million people in the UK carry the faulty gene that causes Cystic Fibrosis - around 1 in 25 of the population.
  • Over 95% of the UK CF population is Caucasian, but CF affects many ethnic groups.
  • Each week, five babies are born with Cystic Fibrosis.
  • Each week, two young lives are lost to Cystic Fibrosis.
  • Currently half of the CF population will live past 41 years of age, and improvements in treatments mean a baby born today is expected to live even longer.

2 comments:

  1. This is amazing and although i don't have CF I'm sure you will help loads of people who do! You're a true inspiration<3

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  2. Awh thankyou very much!xxx

    ReplyDelete