Q&A


Can you catch CF?  No, CF is not contagious it can only be caused by inheriting two copies of the faulty gene.



What is the life expectancy of someone with CF?   It is misleading to suggest that there is an 'average life expectancy' that can be applied to everyone with Cystic Fibrosis. Life expectancy is likely to be different for people of different ages - and this is before taking into account the fact that CF can also affect people differently. The median predicted survival for someone with CF currently stands at 41 years old. This means that according to the statistics on our clinical CF registry, currently half of those with CF will live to over 41 years old, although a baby born today can be expected to live longer.

How does CF affect daily life?  Cystic Fibrosis involves a rigorous daily treatment regime including physiotherapy, oral, nebulised and occasionally intravenous antibiotics, and taking enzyme tablets with food. Some people with CF will have a feeding tube 
overnight.

How is CF treated?  Those with CF have to undergo a daily regime of treatments to stay healthy. This can include taking inhaled and injected drugs to clear mucus and fight infections, taking dozens of enzyme pills to digest food and having physiotherapy morning and night.

Will everyone with CF need a transplant?  No. Transplantation is appropriate only for a patient who is severely ill and for whom all other forms of conventional treatment are no longer helpful. Not all patients at this stage of the disease are suitable for a transplant and some patients may choose not to go on the transplant list

What does the CF Trust do?   The Cystic Fibrosis Trust is the UK's only national charity dealing with all aspects of Cystic Fibrosis (CF). It funds research to treat and cure CF and aims to ensure appropriate clinical care and support for people with Cystic Fibrosis.

Is there a cure? No, at this moment in time there is no cure for CF but treatments available to keep CF patients at the best health possible. At the moment the CF team our undergoing gene therapy trails with some CF patients. This trail will last 18 months and results will be available in 2014   

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